WHY THIS EVENT?
Aplastic Anemia (AA) is a very rare and deadly bone marrow failure disease and receives almost no funding for research. The treatment has not changed since 1986; this is unacceptable. Children 15 years old and younger account for 95% of all diagnosis of AA.
What is Aplastic Anemia?
Aplastic Anemia occurs when the bone marrow stops making enough blood-forming stem cells. Patients with aplastic anemia typically have low blood cell counts in all three blood lines – red blood cells, white blood cells, and platelets. Upon examination, the bone marrow is found to be hypoplastic or aplastic, meaning low growth or no growth of blood-forming stem cells.. Aplastic anemia is a life-threatening condition with very high death rates (about 70% within 1 year) if untreated. The overall five-year survival rate is about 80% for patients under age 20. In recent years, the long-term outcomes of aplastic anemia patients have been continuously improving.
A word from Robert
Robert Whilhite, the original ride director, was deeply moved by his wife Kelly’s battle with Aplastic Anemia, which inspired him to embark on this incredible journey in 2010. Alongside his extraordinary team, they poured their hearts and souls into creating this meaningful charity ride, raising thousands of dollars in the fight against this dreadful disease. Together, they are agents of change, transforming not only treatment but also lives. Let’s join hands and make a difference!
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Register to Ride!
Jackson County Brevet
Experience the beautiful rolling/flat terrain of Jackson County and enjoy the breathtaking scenic views throughout the ride. Join us on June 15, 2024, in Jefferson, GA. Proceeds from this event will be donated to THE KELLY WILHITE APLASTIC ANEMIA RESEARCH FUND at Emory University. Your contribution will directly support clinical research.